Parental Palliative Care Decision-Making: A Collaborative Approach to Protocol Development and IRB Approval
Olafson, Elizabeth A.
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Medical advances result in children living with conditions requiring parental complex healthcare decision-making. Pediatric palliative care team support may decrease negative consequences. A grounded theory study was developed and strengthened during a community healthcare partner's IRB process to explore the process of decision-making for parents who consult with palliative care.